Validating a model of chronic illness and family caregiving
Items were elaborated by the research team in successive work-team sessions considering: patient experience dimensions identified in the literature, as well as IEMAC/ARCHO [ An expert panel was carried out from September to November 2014 using an online survey involving 15 professionals from primary care, public health, social services, management, quality and safety boards and research institutions.
The selection of the participants was based on their knowledge and expertise, each having at least 15 years of experience in clinical or managerial positions. Experts evaluated: content validity (redundancies, absences, misleading questions), face validity (understanding, friendliness, adequacy, ordinal structure), relevance to justify items’ inclusion, adequacy of the type of response scale and the instrument as a whole.
Conclusions: IEXPAC allows measurement of the patient experience of chronic illness care. This growth has placed increasing demands on existing acute-oriented healthcare systems and has resulted in poor quality of care and deficient patient experiences as a consequence of the fragmentation and lack of coordination in the organisation and delivery of care for people living with chronic diseases .
These patients evaluated the 28 reactive items of the questionnaire, regarding appropriateness, readability, acceptability and necessary time of response for each item, as well as two possible types of response scales.
This scale has been used internationally among patients with a variety of chronic health conditions, and has been adapted and validated in many countries.
In a systematic review, Vrijhoef et al  developed the Patient Perceptions of Integrated Care survey (PPIC), assessing a six-dimension model of integrated care.
The results of their answers prompted some changes in the reactive items to be explored in this new instrument.
Two pilot groups, each of 18 patients with chronic conditions, were conducted in December 2014.